Saving my sisters life... - Fundraiser for 5yr Lilis overseas treatment

[Kaz]

This will show my ignorance but where do you donate ?

Link was on the first page.

Here is the link for you.

https://www.gofundme.com/SaveLilisLife

 

[Wolfmother]

Link was on the first page.

Here is the link for you.

https://www.gofundme.com/SaveLilisLife

Thanks Kaz

 

[Trendsetter]

This will show my ignorance but where do you donate ?

I haven't been well for the past few days so I haven't been able to jump on and join my kennel family, but coming back to see this post from Wolfie made my day. I really don't know why, but it made me laugh because I've done exactly the same thing in the other threads. I'll read everything, and for some reason I become blind to links.

Thanks to everyone who's donated! I spoke to my mother and she's struggling to keep herself together since she received a phone call the other day from the hospital, Lil's doctor is pushing for the family to sort out what's to happen when things get worse by this week, regarding when they have to put her on life support and when to shut it off to be specific because according to him, she doesn't have much longer.

As much as I'm a realist and I find false hope misleading, I refuse to believe they're right! I know Lili's going to keep soldiering on and proving them wrong as she has so many times already.
My mother has made the choice to bring Lili to Melb very soon, where we have contacts here who have treatments that can help her much better than the options that the doctors have given in Sydney.
We now have to do everything we can to keep her alive and strong till we can sort things out to get her to Germany.

 

[Trendsetter]

Here I am propped up in hospital bed feeling sorry for myself, then I read this. OMG my heart is breaking for you and your family. To have to watch while your young sister goes through this must be tearing you apart. I know others have asked, but I have a rough conection here. Did you try Charlie Teo?? He worked on my best mate 30 years ago, saved his life. As far as I know, young Jimmypops on here is having a win with him. Regardless, as soon as I'm out of here will send what I can. Good speed to all of you, regardless who you call him. I am not big on prayer, but all of you are in mine.

Thanks DB, I'm sure anyone who's supported Parramatta for so many years and stuck by them, has the strength to beat anything that comes their way!
We've spoken to Charlie, he's an absolute gentleman, unfortunately he looked through her files and scans thoroughly and is unable to help. Now we all know, when Dr Teo says he can't do something, it's a bit of a hope killer, because there's not many other people on earth who have the expertise or balls to perform the operations he's done.
Considering how busy he is, he took the time to look at her case in his own private time, which means the absolute world and speaks volumes about his character.

The fact you've taken the time to come on and show your support means a lot. I hope you get well very soon mate

 

[south of heaven]

Donated again brother will contribute again shortly i hope all is good as can be

 

[dogluva]

Thanks DB, I'm sure anyone who's supported Parramatta for so many years and stuck by them, has the strength to beat anything that comes their way!
We've spoken to Charlie, he's an absolute gentleman, unfortunately he looked through her files and scans thoroughly and is unable to help. Now we all know, when Dr Teo says he can't do something, it's a bit of a hope killer, because there's not many other people on earth who have the expertise or balls to perform the operations he's done.
Considering how busy he is, he took the time to look at her case in his own private time, which means the absolute world and speaks volumes about his character.

The fact you've taken the time to come on and show your support means a lot. I hope you get well very soon mate

I haven't been well for the past few days so I haven't been able to jump on and join my kennel family, but coming back to see this post from Wolfie made my day. I really don't know why, but it made me laugh because I've done exactly the same thing in the other threads. I'll read everything, and for some reason I become blind to links.

Thanks to everyone who's donated! I spoke to my mother and she's struggling to keep herself together since she received a phone call the other day from the hospital, Lil's doctor is pushing for the family to sort out what's to happen when things get worse by this week, regarding when they have to put her on life support and when to shut it off to be specific because according to him, she doesn't have much longer.

As much as I'm a realist and I find false hope misleading, I refuse to believe they're right! I know Lili's going to keep soldiering on and proving them wrong as she has so many times already.
My mother has made the choice to bring Lili to Melb very soon, where we have contacts here who have treatments that can help her much better than the options that the doctors have given in Sydney.
We now have to do everything we can to keep her alive and strong till we can sort things out to get her to Germany.

This saddens me greatly as I am sure it has you, but please do not give up hope. I am rather a glass half full kind of person and I refuse to believe something is not possible unless it has been proved impossible, even if Dr Teo feels in this case he is unable to help. I hope that the specialists in Melbourne can do something to keep this brave little lady going; she is after all someone who you have described as a fighter and one who has come back from the brink on several occasions. Her little body has been through so much but her strength has carried her through so far. My hopes and prayers are with you all at this time.

.

 

[Mr 95%]

'Remember, Hope is a good thing..perhaps the best of things..and no good thing ever dies.' Shawshank Redemption 1994

The words I live by.. All my strength to your sister, you, and your family..

 

[The DoggFather]

How is the little princess brother?

 

[dogluva]

How is the little princess brother?

You are a good man Assassin.
You beat me to it, was about to ask the same thing.

 

[The DoggFather]

You are a good man Assassin.
You beat me to it, was about to ask the same thing.

Well that makes you a good woman Mama

 

[Trendsetter]

I don't want to lie and tell you guys she's fine, but I don't want to say how she really is and bring everyone down either.
To be completely honest, my hope is diminishing slowly. It's destroying me and I don't know what to do.

I drove up to Sydney on Saturday, picked up my mum and sister and brought them down to Melb.
For the last 5 days I've been witnessing first hand her decline in health. The meds that help control the swelling around the brain have caused her to put on a massive amount of weight in the past fortnight and at the moment, the symptoms they told us would occur before she ends up being hospitalized have started.

Talking about things is rather new to me, I'm a typical male who deals with things in his own mind. So I'm not quite sure what to say anymore.. You guys have been extraordinary and I'll never be able to express the appreciation in words, but right now I'm scared and I'm not sure what's going to happen.

 

[Endeavour]

I don't want to lie and tell you guys she's fine, but I don't want to say how she really is and bring everyone down either.
To be completely honest, my hope is diminishing slowly. It's destroying me and I don't know what to do.

I drove up to Sydney on Saturday, picked up my mum and sister and brought them down to Melb.
For the last 5 days I've been witnessing first hand her decline in health. The meds that help control the swelling around the brain have caused her to put on a massive amount of weight in the past fortnight and at the moment, the symptoms they told us would occur before she ends up being hospitalized have started.

Talking about things is rather new to me, I'm a typical male who deals with things in his own mind. So I'm not quite sure what to say anymore.. You guys have been extraordinary and I'll never be able to express the appreciation in words, but right now I'm scared and I'm not sure what's going to happen.

I'm sorry to hear that Lily isn't doing so well but keep on holding out hope for as long as you are able. Its natural to be scared. You don't need to say anything to us....just know that we are here. But if you do want to talk well there is always someone hanging around the kennel....and heaps of us don't mind a private chat either. Sometimes it does help to let the feelings and words out.
Take Care
Helena

 

[dogluva]

I'm sorry to hear that Lily isn't doing so well but keep on holding out hope for as long as you are able. Its natural to be scared. You don't need to say anything to us....just know that we are here. But if you do want to talk well there is always someone hanging around the kennel....and heaps of us don't mind a private chat either. Sometimes it does help to let the feelings and words out.
Take Care
Helena

I second this, such words. Never be afraid to ask for a chat should you feel the need; never feel that you are doing this alone. We may never have met, but the impact of your words on us has shown you have courage just like it shows the courage of Lili. She is a fighter, that much you have said, so she will not give up easily. For now, hold her close, show her your love.You say you are scared and unsure and that is nothing to be ashamed of, take heart from her courage and tenacity. My thoughts and prayers are with you and your family at this time ,but most especially with Lili.

 

[Mr Invisible]

We are always here for you mate.. that's why the call it the Bulldogs family.

All my best wishes and thoughts are with you, your family, and Lilli at the moment...

Here's hoping a miracle comes your way.

 

[Sandra's Bollocks]

the only thing you can do TS, is focus on making her laugh and smile. i know its hard, but to see the difference in her mood will hopefully alleviate at least a smidgen of your feelings of helplessness. and be rest assured the doctors are doing everything in their power to help your lil sis.

at the end of the day, others can give you advice and support til the cows come home (which is a great thing to have) but you need to find that strength within yourself. and you will, because you have to.

and remember theres always some sort of light at the end of the tunnel. my thoughts go out to lili, yourself and your family.

 

[south of heaven]

Dont know what to say bro
But we love ya stay strong

 

[Wolfmother]

Hey TS , just letting know we're still thinking about you .
And saying a little prayer for Lili

 

[south of heaven]

Hey @Trendsetter how are you holding up mate ?

 

[dogluva]

Hey @Trendsetter how are you holding up mate ?

Would also like to know. How is the little princess?

 

[Trendsetter]

I've been drowning myself in my work and trying to avoid reality to be completely honest.

Lili's been stable, she's looking a bit healthier since we stopped the medication they were giving her. Turns out the medication is designed specifically to reduce swelling, but the side affects outweigh the pro's by over 10-1.
If anything, the "medication" would have killed her quicker in another way. (seriously can't believe pharmaceutical companies get away with this shit)

We're still waiting on a reply from the hospital in Germany. They're really strict about who they operate on, they told us they won't operate on anyone if their vitamin D levels are down, so Lili is on a strong dose of Vitamin D supplements and a really strict diet.

Poor girl breaks my heart, it's so hard telling a 5year old that they can't have certain foods they love.

Other than that, we're still rolling with punches