Saving my sisters life... - Fundraiser for 5yr Lilis overseas treatment

[Indiandog]

Yeah bro finally got my knee repaired a few days ago, a lot of pain and struggle but there are things going on which are much worse so I can't complain over it.

still cant believe you have lost your young brother.

I hope you and your family are recovering from this tough time in your lives.

 

[Nano]

still cant believe you have lost your young brother.

I hope you and your family are recovering from this tough time in your lives.

Thank you bro, it's all Allahs will and we have to accept it. Hopefully everything has been good for you.

 

[Indiandog]

Thank you bro, it's all Allahs will and we have to accept it. Hopefully everything has been good for you.

Yeah Alhamdolillah.

 

[Lov_Dog]

Bless Lili's amazing resilience !
Donated.
~c.

 

[blueyedsamurai]

I'll throw some dosh your way mate. My mums best friends daughter died of leukemia when she was about 3 years old so I've seen how tough it can be on a family.

 

[justdogs]

This has to be one of the hardest things I've ever done. It's taken me a couple of days to finally put my pride aside and ask for help, even though TK is my second home and we're all part of a very dysfunctional family.

I guess it's a mixture of never needing help from anyone before and the fact that I have to speak about it now just makes it even more real. But seeing my wife take charge and put her pride aside to seek help in raising the funds needed has given me the strength emotionally to speak about it and follow her lead.

I'll try and make it as short as possible, from the age of one and a half we noticed something wasn't quite normal with my sister, Lili, she had problems walking, issues with her balance, her eyes would roll back constantly, she would have headaches all the time, she'd scream in pain out of nowhere and wake up numerous times every single night screaming and crying from nightmares.

She was referred to a specialist, and for well over a year she was misdiagnosed with numerous amounts of diseases and disorders from MS to Cerebral Palsy and everything in between. She was put on so many medications and had to endure countless treatments and tests only to find out in the end that it was all for nothing.
My mother asked many times for the specialist to send her for an MRI, even the family GP advised the specialist to send Lili for one, to no avail. Eventually my mother had no choice but to see another specialist, fortunately he was very quick to send Lili for one.

Midway through the MRI my mother was advised to rush my sister to the Sydney Children's in Randwick were the doctors would be waiting for her arrival.

Turns out my little princess has Brainstem Glioma, which is a tumour growing on her brain stem.
Our worlds crumbled at that point. Few days had passed, the doctors came back and gave us the news that Lili would be lucky to have a 5% survival rate.. They performed radiotherapy which meant she had to stay in hospital for a few weeks to basically wait to see if she would survive or not.
Being the little soldier she is, she pulled through and the tumour had shrunk by about a millimeter, which was a good sign.

Lili's now reached 5 years old, something they told us would probably not happen when she was initially diagnosed. But unfortunately, last week she collapsed a few times losing balance which was followed by losing the use of her legs.
She was rushed back to the hospital and examined, tests came back and the tumour is now growing to the right side.

We're now back where we started. This time though, we haven't been given many options.
There's one neurosurgeon that can perform the only operation that gives her a chance at life.
So we've been in contact with the hospital in Germany where the neurosurgeon works, and they're optimistic about the operation as they've already done it on other children with an excellent success rate.

The only obstacle now is coming up with the money to pay for it. Now like I mentioned at the start of this, I've never been one to seek help, but in the end, Lili is my heart and soul, pride means nothing if I were to lose her.

I ask for one thing though, whether or not you can help us, I want every single parent/guardian who reads this, to always get a second opinion if you ever doubt your doctor.
Young kids can't tell us exactly what's wrong with them, we put our trust in doctors to tell us.

My sisters specialist thought it was unnecessary to do an MRI because the tests are expensive. Apparently our kids come with price tags when it comes to healthcare, unless they can be used as guinea pigs to trial drugs for diseases they don't even have.

I don't want to see this ever happen to another child.

gofund.me/SaveLilisLife

I am so sorry, but I am hopping everything will go ok, I will help too. My best wishes for you little sister

 

[Trendsetter]

I'll throw some dosh your way mate. My mums best friends daughter died of leukemia when she was about 3 years old so I've seen how tough it can be on a family.

I would have never been able to imagine the impact it would have on people who have family members with cancer. I wouldn't wish this on my worst enemy, everyday just feels like a long dream that'll never end.

I guess what plays on my mind the most and breaks my heart endlessly is the fact that there's a chance my 2 little girls ( 3 & 1yr old) will eventually grow up and forget all the good times they had with their aunty and the joy she brings to every single person she meets.

All we can do is wait, pray and hope.

 

[dogluva]

Circumstances like this are terrible no matter who it impacts on, but this, this is just beyond awful. Children ( very young ones in particular) are so innocent in the ways of the world and so uncomplaining with serious illness. It cannot be easy for her or your family to deal with this situation; I know if it were my child or brother/sister I would be beside myself and just so angry that queries raised were not addressed because "it was too expensive". We are talking about a young life, a young life that has only just started, that has been significantly impacted through mis-diagnosis and inaction.
Will do what I can, it may not be much, but every bit will help. Hopes and prayers be with you. Be strong and know that we do care and I am sure that our family on the kennel will give you whatever support they can, in any way they can.

 

[south of heaven]

Lets keep this thread active people's .
Now lets put our kennel heads together and come up with something we can do to help raise the funds needed for this family .

 

[The DoggFather]

Has anyone got contacts at the Dogs that can nominate her for for 18th man jersey?

@The Greatest maybe you can?

 

[Kaspa]

This little girl has the brightest smile even with the pain she goes through. She has the cutest things to say to those around her, my mother inlaw loves this little angel brings tears to her eyes when she will talk about Lilli hope the family all the best.

 

[Trendsetter]

Sorry guys, haven't been on for a little while, took a little time to myself since my last post.
The warmth it brings to come back and see everyone showing so much support is incredible.

I received a little good news today, which to be honest doesn't surprise me since Lili just keeps producing these superhuman efforts to push through the pain and constantly beat the odds, the swelling has eased and she's got the use of her legs back!
Albeit a minor positive, I know the happiness it'd be giving Lili right now knowing she can finally function on her own.

 

[Trendsetter]

This little girl has the brightest smile even with the pain she goes through. She has the cutest things to say to those around her, my mother inlaw loves this little angel brings tears to her eyes when she will talk about Lilli hope the family all the best.

Since she could talk, she would completely catch people off guard with the things she would say! It made it cuter because she has this weird American like accent that she picked up from watching so much Peppa Pig and other cartoons.

Planning on coming up to Sydney next weekend, I'll see if I can get a sneeky video of her talking.

 

[Kaspa]

Everyone is spreading the word around the area especially around the taxi in Bankstown. Fingers cross everyone can help this angel

 

[Mr Invisible]

Trendsetter & Boxer17 are brothers?

Shit eh.. I never knew that

 

[Kaspa]

Trendsetter & Boxer17 are brothers?

Shit eh.. I never knew that

Lmao no sorry Mr I they ain't brothers but their mothers r good friends.

 

[Trendsetter]

Trendsetter & Boxer17 are brothers?

Shit eh.. I never knew that

Lmao no sorry Mr I they ain't brothers but their mothers r good friends.

Lol don't worry MrI, this is all news to me as well.

I knew growing up in Bankstown it wouldn't surprise me if I knew a few of the people on here, but I guess it is a small world after all.

 

[Trendsetter]

Checked the GFM page recently and the generosity is overwhelming.

If only every person in the world had half the heart you guys have..

 

[Wolfmother]

Will donate on Thursday , so glad to hear Lili's got the use of her legs .

 

[Mr 95%]

Donation done.. I hope this brave journey leads to the success it so richly deserves.. Power to you bro..